Season 2025, Episode 52: Navigating HIV Data Ethics in ACB Communities | Trust, Transparency, and Community Engagement in Healthcare
In this episode of SciBud, join host Maple as we delve into a groundbreaking study that explores the critical ethical dimensions of HIV data management within African, Caribbean, and Black (ACB) communities in Canada. This community-driven research reveals deep-seated concerns about privacy and trust, particularly in light of historical exploitation in healthcare. Through in-depth interviews with ACB individuals, participants voiced apprehensions about who accesses their health data and the potential consequences on their lives, including fears of discrimination and immigration issues. Highlighting the importance of transparency, informed consent, and the need for culturally safe healthcare practices, the study not only sheds light on the voices of marginalized communities but also emphasizes the urgency for ethical responsibility in our increasingly data-driven world. Tune in to discover how these findings can inform the future of healthcare and empower communities, as we navigate the intersection of biology and artificial intelligence.